Monday, June 8, 2009

Quick update of the last few months

Hey Everyone,



Sorry for the LONG delay but a lot has happened in my life since December. To put it the short way I have been to the emergency room 3 times, I have had 3-4 I.v.s, a couple of shots, 2 MRIs, 1 CT scan, and here comes the biggest one surgery! (That kind of sounds like The Twelve Days of Christmas song!) All of this has happened since January 1st! So now that things are beginning to calm back down to normal I would let you know I am still alive!



Praise God! I made it through with the help of my family and all of those who have been praying for me! So I say thank you!!! To all of you have had me in your prayers and please continue to do so as the process is not over yet!



I have switched doctors and I now have a new doctor who is helping me find answers! They think I have Lupus or juvenile arthritis. However the blood work won't match up! I have all the symptoms but not blood markers. Which is a good thing because it means its not attacking my body! Thank goodness! My doctor started me on a medicine to control the pain.



As for the cold-urticaria I am now on a medicine that works wonders!! It controls it greatly! I can now eat ice cream without the effects of a closed up throat! (I am very blessed to now be able to do so. I LOVE ice cream!)



Now about the surgery. I had a MRI on my hips done, and when my pediatrician called the next day she had shocking news! I had an ovarian cyst the size of a tennis ball on my right ovary. Thank goodness I was able to get in to a doctor and had it removed the following week. During surgery I was under a heated blanket and they had the heat running so I would stay nice and toasty! As a result of the heat I ended up with the flu 2 days later! I Stayed 24 hours in the hospital with an i.v. drip.



I am now recovered from surgery and now I move on toward an answer about lupus or juvenile arthritis. My doctor decided to have me do 4 weeks of physical therapy and see if that didn't help with the pain. I am in the middle of the 4 weeks and still have 2 to go so far so good, but I guess we will really know in the end! I have a goal of being able to touch below my knee caps which I just recently accomplished. Now I move on to the real challenge one day being able to touch my toes! Yes this is something I've never accomplished before! Sad but true!



A few fun things that have happened since Christmas is.....I turned 14 (yay!)...I wrote a skit and entered in fine arts through our denomination and I got superior with invitation. (First time I ever competed in it!).......And My sister graduated from High school! (I felt like a frantic bridesmaid!) Like I said a lot has happened since December.



I will be more regular with these posts as God is moving in my life greatly and I want to share this with you!



Have a blessed summer!

Brooke



1 Samuel 12:24

But be sure to fear the LORD and serve him faithfully with all your heart; consider what great things he has done for you.

Thursday, December 18, 2008

Healing

Hey Everyone!

Sorry I haven't updated in a while, life has been really crazy! I hope you had a great Thanksgiving! I will try to update more often now that life is slowing down a bit. Merry Christmas!



Something that has been bothering me is if you ever go up for prayer and you aren't healed people will say things that can honestly get you down. I went forward for prayer one time and obviously I wasn't healed and a lady told me the reason I wasn't healed was because I didn't have faith in God. Wrong! If I didn't have enough faith then, and I haven't been healed now how much faith do I have to have. I also have people say don't claim what you have. Well if I don't acknowledge that there is a need how can He meet it? Some people tell you to stop taking medicine. Some even say they don't need medicine because they already have been healed. If you have lets say asthma and you stop using your inhaler that could be a very bad thing. Let me explain something to you. God gave us medicine to help us not to hurt us. He designed it to help our bodies function better. Taking medicine is not a bad thing. Saying you have been healed is not a bad thing, but stopping what helps you breathe or live a normal everyday life, yeah that's bad.
Recently I went to youth convention and we talked about Jacob wrestling with the angel and how he gave him a new name. Then they gave us a chance to re-name ourselves to something like blessed or beautiful. We each got a name tag that had our new name. When I got ready to write my name I honestly didn't know what to put. But someone said that I should put healed and beautiful. I didn't swell for the rest of the trip and even when I got home I still wasn't swelling. I honestly thought God had healed me and I would be normal again. but within 20 minutes I started swelling. I can not fully explain the anger that I felt because I have never had a time where I truly believed that God had healed me. I got so angry at God because I thought it was my turn. Then it made me realize when will it be my turn. That Sunday we prayed for healing in like 10 peoples bodies. There I stood with my own need praying for other people to be healed. I forgot who was in control. I forgot to be patient for a healing. I forgot all of the things I had told people that read this blog. I told a friend of mine what I was going through and it was so weird because she told every thing I have written on here about. She doesn't even follow my blog. I am so amazed by God and the the ways he uses people to speak into your life.So to conclude my long story let me encourage you in this. Your going to get tired of going forward for prayer and not being healed. But sometimes you need that time in the alter. I have had God speak into my life when I was up there praying for a healing. Don't stop going up for prayer just because you think people will get tired of praying for you. They won't. Another thing is your going to get tired of not being the one who is healed. Your going to get tired of being the strong person who has to live with this everyday. Believe me, I get tired of being the kid that carries this on my shoulders. Being strong putting on a smiling face every time someone asks you how you are when really your knee is throbbing or your are swelling because the room is cold. It can get boring fast. Let me say it is okay to get tired. Let me say that again. IT IS OKAY TO GET TIRED. People will accept you for who you are and if sometimes you don't feel like being the best person that night it's okay. We all get tired, we all need a break every once in a while. It's called being a human. We can not run around like a super hero and not get tired. Sometimes people get tired of waiting for a healing. Please know that God does have a healing in store for you. Please know that God does have a healing for you no matter what. I know that whether I am healed on earth there is a healing waiting for me in Heaven. So I can say I am on my way to a healing because I am.

The other night I was reading my Bible when this verse pops into my head.

Genesis 8:8-12
8 Then he sent out a dove to see if the water had receded from the surface of the ground. 9 But the dove could find no place to set its feet because there was water over all the surface of the earth; so it returned to Noah in the ark. He reached out his hand and took the dove and brought it back to himself in the ark. 10 He waited seven more days and again sent out the dove from the ark. 11 When the dove returned to him in the evening, there in its beak was a freshly plucked olive leaf! Then Noah knew that the water had receded from the earth. 12 He waited seven more days and sent the dove out again, but this time it did not return to him.

I view people with illness as modern day Noah's. When I go forward for prayer its like I am sending out my own white dove to see if it can find normal healed ground. Noah didn't get it right away. It took several tries before the bird didn't come back. Praying for a healing is like this. He tried like 3 times, and they weren't back to back either. It was seven days before he tried again. He also waited 40 days and nights before he even started sending the dove out. We are like Noah as we are waiting for our day of dry ground when the bird does not return. When it will be safe to leave Doctor Ray behind and carry on my life without worry or fear.

Everyday is one step closer to healing! My day of dry ground is coming!

Brooke

Friday, October 24, 2008

Having Blood Taken

Yes having blood taken is not fun in any way. I once conquered the fear of it only because they took it all the time. But for a little while I didn't have any tests to run it seemed like I was the solved case that's now been reopened. I let that little fear creep back to its original place. Once that fear came back I realized I have to conquer it again. The way I realized it was the nurse stuck the needle in and held it at an angle that kept continuous pain shooting through my arm. But I would rather grin and bear it then make her readjust. She took 4-5 tubes of blood that day and my blood doesn't flow really fast, needless to say it felt like forever.

Sometimes its not the pain I feel its the fact some stranger is about to stick a needle into my arm and I don't even know them. Granted I wouldn't feel any better if my mom would do it. I just don't like the way blood is taken. But I have kind of over come that fear once more.

If you don't like having blood taken let me offer some advice. 1. Drink plenty of water the day before and the day of. This makes the veins swell up and easier to find. Which if your like me They never can find my veins, but water helps. 2. When they are taking the blood don't watch them I promise it makes it hurt worse. Some think if they watch they can prepare for the pain but honestly I make such a big deal about it the pain is small compared to what I prepared for. What I do is look away and try to focus on something other then the needle. Sometimes I look right at the nurse and tell her what I am learning in life and at school. Other times about church, maybe I throw in a little joke just to get some laughter. Laughter is the key to life use it when in pain and it doesn't hurt as much, I think.

I had and have to get over this fear and I will because I could be using my fear on something else more important like that monster under my bed.

If you have any fear of having blood taken. Let me assure you if you sit still, soon it will all be over. Count to 10, think good thoughts, and pray, then it will all be over. Remember if you get scared when having blood taken it doesn't make you any less of a man or woman we all get scared.

Brooke

Romans 8:28
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.

Wednesday, October 15, 2008

I Can Do It !!!!!!!

Most people who have a website about cold-urticaria do a post about the things they can't do. But instead I think of things that I can do.

I can be a writer, doctor, nurse, librarian, secretary, or a youth pastors wife. So what if I can't be an ice skater, a football coach (They dump the ice on them after each game.), diver, or the little dairy stockers. Many people dwell on things their disabilities take away. I personally never wanted to be an ice skater or a diver. I hate skating and all I can do is the doggy paddle. But its like if we know that's not an option any more we want it to be. Why? I honestly don't know why. I feel if God wants you to do that then that door will be opened. Or God could heal you and enable you to do that thing.


I hate it when we dwell on our down falls instead of what we could be doing with life. Look me in the eyes (figuratively speaking) when I say this: God gave you talents USE THEM. Are you? He did not make you to sit on the couch. He enabled you to sit on the couch ever so often, not forever. I see so many ungodly people not using their talents that it honestly makes me sad. Then I enter the church and there are more unused people. If you have a talent please use it. Some of us would say we don't have a talent. Wrong everyone has a talent you just have to recognize that you do. Then that is when you have to search for or better develop your talent.


So if I can do it you can too. I never would have dreamed I could write a blog, or a play, or a short story. But I did and if I did you can do something great too.


Please also note don't wake up one day and say "I shall play the guitar today!" it doesn't work I tried..........many times. If you don't play the guitar that's fine, maybe music isn't your talent. Tried writing? If your hand cramps don't get discouraged mine already is and I'm typing. Maybe your job is to be that cheerful face someone else sees. The person that's there when your friends are down. That's the best person to be, believe me I know I have many people there to pick me up when I'm falling.

The point is find what your good at and expand it. If you do what your made to do you will be a whole lot happier than if you were doing something else.


God has a purpose, I can do it, you can do it!


May God bless you this week!

Brooke


Philippians 4:13
I can do everything through him who gives me strength.

Tuesday, October 7, 2008

Medicine and Doctors

I really hate going to the doctor. I don't enjoy it but I go to the doctor because I want answers. I don't just go for the fun of it. Doctors take blood and poke you and turn you and shove you, believe it or not to help you. I am glad that I have doctors because if I didn't have them I would be some undiagnosed person almost an unidentified blob.

I also really hate taking medicine. Taking medicine everyday can be a real bother. It helps more than it hurts but its a bother just the same. I take 2 medicines everyday which is small compared to some people I know.

But God gave us doctors and God gave us medicine to help us not hurt us. If it wasn't for a doctor by now I probably would have jumped into a pool and have a serious injury. I take the time I have with my nurses and doctors and use it to tell them how God is moving through my life or what my church is doing. I get a lot of that time when they are trying to take my blood, before they get any taken I have almost every nurse in there trying to find my veins. What can I say if you tell them the latest thing that is happening in your youth group chances are they will start to talking. One time I decided to tell Mom and Dad something I had thought about at the same time nurses were there. We sing a song in youth called Hallelujah by Bethany Dillon. In the song it says Hallelujah, Hallelujah, whatever's in front of me help me to sing hallelujah. We sang that the week before all my problems started back. I shared how singing that song the week before I didn't know I would be here this week. And just as the song says I am still singing hallelujah and I am not getting down about instead I am picking myself up and carrying on. The nurses were a little bit shocked as were my parents that I had said that.

So if God gives you the time with the doctors, instead of being down and out try to be an encouragement. And remember we have doctors for good not bad. Medicine to help us be normal or as normal as we can be that day. God gave it to us as a helper not to be a hurt.

this week keep your chin up so you can't keep your head down.

B

Monday, September 15, 2008

Why Can't I Be Normal?

Sometimes when you have medical problems you wish just for a day you could be normal. We know we can't but we still wish we could. Other times you wish other people could live with it just for a day then see if they understand. Truth is, well at least for me, I wouldn't wish this on anyone. Most of my friends say that God doesn't give hard things to weak people, but rather to strong people who He can trust. If that's true sometimes I wish I could be weak.

The problem I run into is people don't understand when I tell them my problem. They either look like I have a third eye or back away thinking I'm contagious. Other times they look like they understand or try to and really don't. I was talking to a friend of mine who goes through a lot of the same things I go through if not more. She said just for once she wishes she could be normal. It was then I realize what is normal for me? A good day is no knee pain or swelling. I have a few of those not often. But I think if I was normal for one day I wouldn't know what to do with myself. There is a book and a saying that goes all around the world that says "Normal is just a setting on your dryer" I kinda believe it. If normal doesn't exist then how can we have a normal day? God created each of us different in our own way so a normal day is different for everyone.

I hate that I'm not normal like everyone else. I wish some days I could get out of the van and leave my bulging purse that holds an epipen and blanket. Where I don't have to get out of the pool every five minutes. But God doesn't want me to be normal right now. I'm different because its my purpose. I'm glad I'm not normal it can't be as much fun.
I like being me but I wish you could understand fully. Not so you will feel sorry for me, but just to let you understand a day in the life off a weird person.

If you do deal with medical problems daily I encourage you keep your chin up some days are better than others. My favorite saying is "keep your chin up because then you can't put your head down." God has a purpose for it all.

For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11

Thursday, August 28, 2008

Finding God's Purpose in any Situation

Sometimes when a situation comes up we drop everything and devote our life to solving the situation. Sometimes God just wants us to put the situation in His hands and say God you take control. God created it that way but the way God created it isn't the way we want it. God has a purpose for every situation we go through.

Which brings me to my point if you have to go through a situation or in my case an illness how do you let God take control?
Because He does have a purpose for it we have to sit back and let God so to speak do His thing. Instead of trying to solve the situation lets try to find God in it. God is moving through my life with this situation how?
God uses me everyday as a witness. Because people see me in the mall with a jacket on and they ask if I am cold. That opens the door to talk about what I have and how God is moving through my life. and how through it all I still have to have faith. God's purpose for this situation is I am a living breathing testimony. I don't understand why I have it, but I know God has a reason and thats good enough for me.
The time you spend in the situation should be a time of prayer and faith in God rather than spent worrying and being restless.
Romans 8:28 says
And we know that in all things God works for the good of those who love him who have been called according to his purpose.

I live knowing that the Bible says God has a purpose for me and what happens today was His purpose for my life. If my knees swell up then I take it slow thats His purpose for today. If I am in great health then I do have an active day today. I ask God everyday to use me in any way for His benefit, let that be my goal: To please Him.