Sometimes when a situation comes up we drop everything and devote our life to solving the situation. Sometimes God just wants us to put the situation in His hands and say God you take control. God created it that way but the way God created it isn't the way we want it. God has a purpose for every situation we go through.
Which brings me to my point if you have to go through a situation or in my case an illness how do you let God take control?
Because He does have a purpose for it we have to sit back and let God so to speak do His thing. Instead of trying to solve the situation lets try to find God in it. God is moving through my life with this situation how?
God uses me everyday as a witness. Because people see me in the mall with a jacket on and they ask if I am cold. That opens the door to talk about what I have and how God is moving through my life. and how through it all I still have to have faith. God's purpose for this situation is I am a living breathing testimony. I don't understand why I have it, but I know God has a reason and thats good enough for me.
The time you spend in the situation should be a time of prayer and faith in God rather than spent worrying and being restless.
Romans 8:28 says
And we know that in all things God works for the good of those who love him who have been called according to his purpose.
I live knowing that the Bible says God has a purpose for me and what happens today was His purpose for my life. If my knees swell up then I take it slow thats His purpose for today. If I am in great health then I do have an active day today. I ask God everyday to use me in any way for His benefit, let that be my goal: To please Him.
Thursday, August 28, 2008
Saturday, August 23, 2008
How to live with an Illness
How do you live with an illness and still be yourself?
Its hard. First you have to get over the shock . Its like waking up one day normal and weird the next.
How did I attack the major new bump in the road? By taking one day at a time. It was hard to adjust to who I am today. I sat around wondering what to do know that my life had been shattered. I thought all the goals I had could never be accomplished. And some of them I really can't. I sat around wondering why God did this to me? Why was I the weird kid? Why couldn't it have been my sister? Because the process of finding out what I had took so long I had time to think about it. But it wasn't until I found out what I had I that I began to deal with it. It was very hard finding answers to my questions but I found them. I slowly began to realize God allowed me to have this for a reason. What reason I don't know, maybe I'm suppose to help other kids cope with finding out they have something major.
One thing to remember is don't plan that for the rest of your life all you can do is sit on the couch and eat potato chips. But rather take it slow at least in the beginning. Figure out what you can do and can't do.
For example I can't go diving into a pool but I can get in slowly. Don't sit on the couch all day moping around because your the one dealing with it. Stay active. For example maybe your on the football team and what illness you have makes it where you can't do a lot of running. Don't give up football right away talk to your doctor and your coach to see what they can do. You still can do things you just have to limit how long you do them.
The best thing you can do is get a support group. I have at least 3. (1) A local community theatre (2) My family (3) My Church. A school group is great but you're limited on time. Your family is perfect because they are always there. And a church is wonderful because you know someone is always praying for you.
A church can really lift you up. For one thing if you are going to a church then make sure you have an Incredible youth pastor or pastor. I am blessed, I have both. My youth ministry is always there for me. I can call anyone and have the youth ministry praying for me in an instant.
The whole thing is find people who are encouraging to you and can lift you up.
Its hard. First you have to get over the shock . Its like waking up one day normal and weird the next.
How did I attack the major new bump in the road? By taking one day at a time. It was hard to adjust to who I am today. I sat around wondering what to do know that my life had been shattered. I thought all the goals I had could never be accomplished. And some of them I really can't. I sat around wondering why God did this to me? Why was I the weird kid? Why couldn't it have been my sister? Because the process of finding out what I had took so long I had time to think about it. But it wasn't until I found out what I had I that I began to deal with it. It was very hard finding answers to my questions but I found them. I slowly began to realize God allowed me to have this for a reason. What reason I don't know, maybe I'm suppose to help other kids cope with finding out they have something major.
One thing to remember is don't plan that for the rest of your life all you can do is sit on the couch and eat potato chips. But rather take it slow at least in the beginning. Figure out what you can do and can't do.
For example I can't go diving into a pool but I can get in slowly. Don't sit on the couch all day moping around because your the one dealing with it. Stay active. For example maybe your on the football team and what illness you have makes it where you can't do a lot of running. Don't give up football right away talk to your doctor and your coach to see what they can do. You still can do things you just have to limit how long you do them.
The best thing you can do is get a support group. I have at least 3. (1) A local community theatre (2) My family (3) My Church. A school group is great but you're limited on time. Your family is perfect because they are always there. And a church is wonderful because you know someone is always praying for you.
A church can really lift you up. For one thing if you are going to a church then make sure you have an Incredible youth pastor or pastor. I am blessed, I have both. My youth ministry is always there for me. I can call anyone and have the youth ministry praying for me in an instant.
The whole thing is find people who are encouraging to you and can lift you up.
My Story
Hi I am Brooke and here is my story.
In December 2005 I was ten years old. I was sitting at home and my hands and feet turned bright red and began to swell up and itch. I also had a butterfly rash across my face. I made the mistake of putting on the blue cooling gel you use with sunburns. Key word there cooling I began to swell worse as the day drew on. My parents came home to see me sitting on the couch looking like a swollen red balloon.
My parents took me to the Dr and the Dr said this looks like Lupus to me because of the 'BUTTERFLY RASH".
I took some Benadryl and went right on to the church Christmas party. It was great until the Benadryl wore off and I started swelling up again. All the kids at the party began to look worried as my face swelled up and turned bright red. I scratched at my face and it made it worse. The next day mom and dad took me to the doctor and had blood taken. The test results came back and there wasn't anything unusual about it. The swelling seemed to go away for a while, but later came back. I went back in for more testing. This time the DR found something that made her think I had a tumor in my kidney. I was sent over to the hospital for tests. Dad was at home because we were having our roof repaired from Hurricane Katrina. That day I learned about what an ultrasound is and I started to think about maybe having a career in that field. My kidneys checked out fine.
I was sent to a pediatric rheumatologist who sent me to an allergist. In June 2007 the allergist diagnosed me with Cold Urticaria. Problem solved right? No. In May of this year I was standing eating lunch and my legs began to turn a dark shade of purple and my knees swelled up.
I began the blood tests again and I went back to see the rheumatologist and so far they put me on a baby aspirin a day. We are still looking for an answer as to what this is. Everything takes time and fortunately time is what we have.
Cold Urticaria, a fancy name for saying allergic to cold temperatures, is very rare. It can be a symptom of other things like RAYNAULDS. When a person has this, they have to be careful when inside a really cold building or even eating too much ice.
The purple legs that I get some days is Livedo Riticularis and is not all serious, but the baby aspirin helps control it.
I return to my Dr in Dec. I know God has a reason for all of this. I am thankful to have great friends who do not laugh at me when I have to be bundles up in a blanket in the middle of July, or when I wear gloves in the summertime to keep my hands warm.
In December 2005 I was ten years old. I was sitting at home and my hands and feet turned bright red and began to swell up and itch. I also had a butterfly rash across my face. I made the mistake of putting on the blue cooling gel you use with sunburns. Key word there cooling I began to swell worse as the day drew on. My parents came home to see me sitting on the couch looking like a swollen red balloon.
My parents took me to the Dr and the Dr said this looks like Lupus to me because of the 'BUTTERFLY RASH".
I took some Benadryl and went right on to the church Christmas party. It was great until the Benadryl wore off and I started swelling up again. All the kids at the party began to look worried as my face swelled up and turned bright red. I scratched at my face and it made it worse. The next day mom and dad took me to the doctor and had blood taken. The test results came back and there wasn't anything unusual about it. The swelling seemed to go away for a while, but later came back. I went back in for more testing. This time the DR found something that made her think I had a tumor in my kidney. I was sent over to the hospital for tests. Dad was at home because we were having our roof repaired from Hurricane Katrina. That day I learned about what an ultrasound is and I started to think about maybe having a career in that field. My kidneys checked out fine.
I was sent to a pediatric rheumatologist who sent me to an allergist. In June 2007 the allergist diagnosed me with Cold Urticaria. Problem solved right? No. In May of this year I was standing eating lunch and my legs began to turn a dark shade of purple and my knees swelled up.
I began the blood tests again and I went back to see the rheumatologist and so far they put me on a baby aspirin a day. We are still looking for an answer as to what this is. Everything takes time and fortunately time is what we have.
Cold Urticaria, a fancy name for saying allergic to cold temperatures, is very rare. It can be a symptom of other things like RAYNAULDS. When a person has this, they have to be careful when inside a really cold building or even eating too much ice.
The purple legs that I get some days is Livedo Riticularis and is not all serious, but the baby aspirin helps control it.
I return to my Dr in Dec. I know God has a reason for all of this. I am thankful to have great friends who do not laugh at me when I have to be bundles up in a blanket in the middle of July, or when I wear gloves in the summertime to keep my hands warm.
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